Dutch Haemophilia Registry

01/02/2024
29/05/2026
Data source
Human
Disease registry
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Record completeness

Administrative details

Data source ID

48361

Name of data source

Dutch Haemophilia Registry

Data source acronym

HemoNED - Haemophilia

Data holder

Data source type

Disease registry

Main financial support

Funding from industry or contract research

Care setting

Hospital outpatient care

Data source qualification

If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.

Yes

Description of the qualification

The HemoNED Data host MRDM is ISO27001 certified

Data source website

Contact details

Data source regions and languages

Data source countries

Netherlands

Data source languages

Dutch
Data source establishment

Data source established

Data source time span

First collection: 14/10/2017
The date when data started to be collected or extracted.

Publications

Data source publications