HemoNED Foundation

01/02/2024
01/02/2024
Institution
Other
Institution identification

Institution ID

3331240

Institution full name and acronym

HemoNED Foundation

Institution countries

Netherlands

Type of institution

Other

Institution role

Other

Institution website

ENCePP partner

No
Institution description
HemoNED, the nationwide registry for people with hemophilia or associated disorders in The Netherlands. The most important objective is to improve the quality of care for this group of patients
Institution details
Experience with collecting data directly from individual patients or respondents:
Yes
Interest in carrying out research that is funded by pharmaceutical companies:
Yes

Contact details