Dutch Haemophilia Registry

01/02/2024
29/05/2026
Data source
Human
Disease registry
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Population Qualitative Data

Population age groups

  • Paediatric Population (< 18 years)
    • Neonate
      • Preterm newborn infants (0 – 27 days)
      • Term newborn infants (0 – 27 days)
    • Infants and toddlers (28 days – 23 months)
    • Children (2 to < 12 years)
    • Adolescents (12 to < 18 years)
  • Adult and elderly population (≥18 years)
    • Adults (18 to < 65 years)
      • Adults (18 to < 46 years)
      • Adults (46 to < 65 years)
    • Elderly (≥ 65 years)
      • Adults (65 to < 75 years)
      • Adults (75 to < 85 years)
      • Adults (85 years and over)

Estimated percentage of the population covered by the data source in the catchment area

Not available

Description of the population covered by the data source in the catchment area whose data are not collected (e.g., people who are registered only for private care)

Nation-wide
Population

Population size

3270

Active population size

3270

Population by age group

Age group Population size Active population size
Paediatric Population (< 18 years)
722
722
Adolescents (12 to < 18 years)
319
319
Adult and elderly population (≥18 years)
2548
2548
Adults (75 to < 85 years)
246
246
Median observation time

Median time (years) between first and last available records for unique individuals

3.00

Median time (years) between first and last available records for unique active individuals (alive and currently registered)

3.00