Dutch Haemophilia Registry

01/02/2024
09/03/2026
Data source
Human
Disease registry
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Population Qualitative Data

Population age groups

  • Paediatric Population (< 18 years)
    • Neonate
      • Preterm newborn infants (0 – 27 days)
      • Term newborn infants (0 – 27 days)
    • Infants and toddlers (28 days – 23 months)
    • Children (2 to < 12 years)
    • Adolescents (12 to < 18 years)
  • Adult and elderly population (≥18 years)
    • Adults (18 to < 65 years)
      • Adults (18 to < 46 years)
      • Adults (46 to < 65 years)
    • Elderly (≥ 65 years)
      • Adults (65 to < 75 years)
      • Adults (75 to < 85 years)
      • Adults (85 years and over)

Estimated percentage of the population covered by the data source in the catchment area

Not available

Description of the population covered by the data source in the catchment area whose data are not collected (e.g., people who are registered only for private care)

Nation-wide
Population

Population size

3008

Active population size

3008

Population by age group

Age group Population size Active population size
Paediatric Population (< 18 years)
663
663
Infants and toddlers (28 days – 23 months)
8
8
Children (2 to < 12 years)
385
385
Adolescents (12 to < 18 years)
270
270
Adult and elderly population (≥18 years)
2345
2345
Adults (75 to < 85 years)
231
231
Median observation time

Median time (years) between first and last available records for unique individuals

3.00

Median time (years) between first and last available records for unique active individuals (alive and currently registered)

3.00