Population Qualitative Data

Population age groups

Paediatric Population (< 18 years)
Children (2 to < 12 years)
Adolescents (12 to < 18 years)
Adults (18 to < 46 years)
Adults (46 to < 65 years)
Elderly (≥ 65 years)
Adults (65 to < 75 years)
Adults (75 to < 85 years)
Adults (85 years and over)

Estimated percentage of the population covered by the data source in the catchment area

EU area: Utilizing estimates of HD prevalence in predominantly Caucasian populations, i.e., 9.71 per 100,000 (Rawlins, 2016), we estimate that Enroll-HD currently provides 18% coverage of the European manifest HD population. Coverage of the European premanifest population in Enroll-HD is estimated to be between 3% and 4%. Global estimates will be provided in the future.
Family linkage

Family linkage available in the data source permanently or can be created on an ad hoc basis

Ad hoc
Population

Population size

25550

Active population size

12905

Population by age group

Age groupPopulation sizeActive population size
Paediatric Population (< 18 years)
38
14
Children (2 to < 12 years)
13
5
Adolescents (12 to < 18 years)
25
9
Adults (18 to < 46 years)
11164
6205
Adults (46 to < 65 years)
11001
5460
Elderly (≥ 65 years)
3347
1226
Adults (65 to < 75 years)
2691
1049
Adults (75 to < 85 years)
613
168
Adults (85 years and over)
43
9
Median observation time

Median time (years) between first and last available records for unique individuals

3.00

Median time (years) between first and last available records for unique active individuals (alive and currently registered)

2.00