Enroll-HD: A Prospective Registry Study in a Global Huntington’s Disease Cohort A CHDI Foundation Project

First published 01/02/2024

Last updated 17/10/2024

Data source

Human

Biobank

Disease registry

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Administrative details

PURI: https://redirect.ema.europa.eu/resource/35258

Data source ID: 35258

Name of data source: Enroll-HD: A Prospective Registry Study in a Global Huntington’s Disease Cohort A CHDI Foundation Project

Data source acronym: Enroll-HD

Data holder: CHDI Foundation

Data source type: Biobank
Disease registry

Main financial support: Funding by own institution

Care setting: Hospital outpatient care
Other
Secondary care – specialist level (ambulatory)

Data source qualification If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.: Yes

Description of the qualification: EMA Qualification Opinion for the use of Enroll-HD as a data source and infrastructure support for post-authorisation monitoring of medical products

Data source website: https://www.enroll-hd.org/

Contact details

Selene Capodarca

Main

selene.capodarca@enroll-hd.org

Data source regions and languages

Data source countries: Argentina
Australia
Austria
Belgium
Canada
Chile
Colombia
Czechia
Denmark
France
Germany
Ireland
Italy
Netherlands
New Zealand
Norway
Peru
Poland
Portugal
Spain
Switzerland
United Kingdom
United States

Data source languages: English

Data source establishment

Data source established: 15/06/2011

Data source time span: First collection: 25/07/2012
The date when data started to be collected or extracted.

Publications

Data source publications