DARWIN EU® Multiple myeloma: patient characterisation, treatments and survival in the period 2012-2022

ENCePP Code of conduct

No

Data sources

• Data source(s):
  The Information System for Research in Primary Care (SIDIAP)

  IQVIA Disease Analyzer Germany

  Institut Municipal d'Assistència Sanitària Information System

  Estonian Biobank

  Auria Clinical Informatics (FinOMOP)

  Clinical Data Warehouse of the Bordeaux University Hospital

  Netherlands Cancer Registry
• Data sources (types):
  Disease registry

  Electronic healthcare records (EHR)

  Other
• Data sources (types), other:
  Hospital data and biobank data

Use of a Common Data Model (CDM)

• CDM mapping:
  Yes

CDM Mappings

• CDM name:
  OMOP
• CDM website:
  https://www.ohdsi.org/Data-standardization/

Data quality specifications

• Check conformance:
  Unknown
• Check completeness:
  Unknown
• Check stability:
  Unknown
• Check logical consistency:
  Unknown

Data characterisation

• Data characterisation conducted:
  No