DARWIN EU® Multiple myeloma: patient characterisation, treatments and survival in the period 2012-2022

ENCePP Code of conduct

No

Data sources

• Data source(s):
  The Information System for Research in Primary Care (SIDIAP)

  IQVIA Disease Analyzer Germany

  Institut Municipal d'Assistència Sanitària Information System / Hospital del Mar / PSMAR / (Hospital del Mar Information System)

  Estonian Biobank

  Auria Clinical Informatics (FinOMOP)

  Clinical Data Warehouse of the Bordeaux University Hospital

  Netherlands Cancer Registry
• Data sources (types):
  Disease registry

  Electronic healthcare records (EHR)

  Other
• Data sources (types), other:
  Hospital data and biobank data

Use of a Common Data Model (CDM)

• CDM mapping:
  Yes

CDM Mappings

• CDM name:
  OMOP
• CDM website:
  https://www.ohdsi.org/Data-standardization/

Data quality specifications

• Check conformance:
  Unknown
• Check completeness:
  Unknown
• Check stability:
  Unknown
• Check logical consistency:
  Unknown

Data characterisation

• Data characterisation conducted:
  No