Access and validation

Governance details

Documents or webpages that describe the overall governance of the data source and processes and procedures for data capture and management, data quality check and validation results (governing data access or utilisation for research purposes).
https://cprd.com/

Biospecimen access

Are biospecimens available in the data source (e.g., tissue samples)?

No

Access to subject details

Can individual patients/practitioners/practices included in the data source be contacted?

No

Description of data collection

https://cprd.com/primary-care-data-public-health-research
Event triggering registration

Event triggering registration of a person in the data source

Practice registration

Event triggering de-registration of a person in the data source

Death
Practice deregistration

Event triggering creation of a record in the data source

Patient has contact with a GP practice
Data source linkage

Linkage

Is the data source described created by the linkage of other data sources (prelinked data source) and/or can the data source be linked to other data source on an ad-hoc basis?

Yes

Linkage description, possible linkage

https://cprd.com/cprd-linked-data#Data%20from%20NHS%20Digital

Linked data source 1

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

Hospital Episode Statistics (HES): HES Accepted Patient Care (APC), HES Accident & Emergency (A&E), HES Outpatient (OP). Office of National Statistics (ONS) mortality records. Index of Multiple Deprivation (IMD), Townsend index, Carstairs index, Rural Urban classification

Linkage variable

Patient identifier
Data management specifications that apply for the data source

Data source refresh

Every 6 months

Informed consent for use of data for research

Other

Informed consent, other

Patient are assumed to consent, but they can withdraw consent at any time

Possibility of data validation

Can validity of the data in the data source be verified (e.g., access to original medical charts)?

No

Data source preservation

Are records preserved in the data source indefinitely?

Yes

Approval for publication

Is an approval needed for publishing the results of a study using the data source?

Yes

Data source last refresh

Common Data Model (CDM) mapping

CDM mapping

Has the data source been converted (ETL-ed) to a common data model?

Yes

CDM Mappings

Data source ETL CDM version

5.32, with plan to use 5.4 in the next ETL

Data source ETL frequency

6,00 months

Data source ETL status

Completed

Data source ETL specifications (link)