Administrative details

Data source ID

50044

Name of data source

The World Federation of Hemophilia Gene Therapy Registry

Data source acronym

The WFH Gene Therapy Registry

Data holder

Data source type

Other

Data source type, other

Prospective studies database

Main financial support

Funding from industry or contract research

Care setting

Primary care – specialist level (e.g. paediatricians)

Data source qualification

If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.

Yes

Description of the qualification

EMA qualification process ongoing

Data source website

Contact details

Data source regions and languages

Data source countries

Belgium
France
Germany
Ireland
Italy
Netherlands
Spain
Sweden
Switzerland
United Kingdom

Data source languages

English
Data source establishment

Data source established

Data source time span

First collection: 15/10/2023
The date when data started to be collected or extracted.

Publications

Data source publications

Studies

List of studies that have been conducted using the data source