Institution identification

PURI

https://redirect.ema.europa.eu/resource/3331238

Institution ID

3331238

Institution full name and acronym

World Federation of Hemophilia (WFH)

Institution countries

Canada

Type of institution

Not-for-profit

Institution role

Data holder

Institution website

ENCePP partner

No
Institution description
The World Federation of Hemophilia (WFH) is a non-profit organization dedicated to improving and sustaining care for people with inherited bleeding disorders around the world.
Institution details
Experience with collecting data directly from individual patients or respondents:
Yes
Interest in carrying out research that is funded by pharmaceutical companies:
Yes

Contact

Studies conducted by the institution