European Reference Network on Rare Hematological Diseases (ERN-EUROBLOODNET)

ERN-EuroBloodNet is a collaborative network aiming to improve the healthcare services of complex or rare haematological diseases (RHD) and conditions that require highly specialised treatment in Europe.
ERN-EuroBloodNet disease coverage involves more than 450 RHDs according to ORPHA classification, encompassing oncological (for adult patients) and non-oncological (for adult and paediatric patients).

ERN-EUROBLOONET Coordination:
- Assistance Publique - Hôpitaux de Paris (AP-HP)
Prof. Pierre Fenaux, ERN Coordinator, Chair of the oncological hub
(pierre.fenaux@aphp.fr)
- Université libre de Bruxelles (ULB/Hôp. Erasme HUB)
Prof. Béatrice Gulbis, ERN co-Coordinator, Chair of the non-oncological hub
(beatrice.gulbis@lhub-ulb.be)
- Vall d’Hebron University Hospital - Vall d’Hebron Research Institute (HUVH/VHIR)
Dr María del Mar Mañú-Pereira, ERN Scientific Coordinator and ENROL registry Coordinator
(mar.manu@vhir.org)