European Registries for Rare Endocrine and Bone Conditions
First published:
06/02/2026
Austria
Belgium
Croatia
Cyprus
Czechia
Denmark
Estonia
Finland
France
Germany
Greece
Hungary
Israel
Italy
Latvia
Lithuania
Luxembourg
Netherlands
Norway
Poland
Portugal
Romania
Serbia
Slovakia
Slovenia
Spain
Sweden
Switzerland
Türkiye
Ukraine
United Kingdom
United Kingdom (Northern Ireland)
Data source
Human
Disease registry
Système National des Données de Santé (French national health system main database)
First published:
30/01/2026
France
Data source
Human
Administrative healthcare records (e.g., claims)
Death registry
Longitudinal Data Collection from Patients with Spinal Muscular Atrophy (SMArtCARE)
First published:
28/01/2026
Austria
Germany
Switzerland
Data source
Human
Disease registry
The Danish Multiple Sclerosis Registry
First published:
28/01/2026
Denmark
Data source
Human
Disease registry
Respiratory Tract Infection (RTI) Observatory
First published:
28/01/2026
France
Germany
Netherlands
Spain
United Kingdom
Data source
Human
Administrative healthcare records (e.g., claims)
Diagnostic tests or procedures reimbursement
Disease registry
Drug registry
Emergency care discharge records
Hospital discharge records
Hospital inpatient records
Hospital outpatient visit records
Pharmacy dispensing records
Registration with healthcare system
Specialist ambulatory care records
Vaccination registry
Rhekiss: Rheuma - Kinderwunsch und Schwangerschaft
First published:
28/01/2026
Germany
Data source
Human
Disease registry
Optimum Patient Care Research Database Australia (OPCRDA)
First published:
27/01/2026
Australia
Data source
Human
Other
Primary care medical records
UK Cystic Fibrosis Registry
First published:
27/01/2026
United Kingdom
Data source
Human
Disease registry
Other
RABBIT-SpA: Disease register for axial spondyloarthritis and psoriatic arthritis
First published:
21/01/2026
Germany
Data source
Human
Disease registry
Norwegian Health Registers
First published:
20/01/2026
Norway
Data source
Human
Administrative healthcare records (e.g., claims)
Pharmacy dispensing records
Population registry
Health Impact - Swedish Population Evidence Enabling Data-linkage
First published:
16/01/2026
Sweden
Data source
Human
Birth registry
Cancer registry
Death registry
Disease registry
Drug registry
Hospital discharge records
Hospital inpatient records
Hospital outpatient visit records
Population registry
Primary care medical records
Vaccination registry
RIOJA SALUD
First published:
09/01/2026
Spain
Data source
Human
Other
Population registry
Registration with healthcare system
Czech Registry of Monoclonal Gammopathies
First published:
05/01/2026
Czechia
Data source
Human
Cancer registry
Disease registry
Hospital inpatient records
Hospital outpatient visit records
Other
Pharmacovigilance Program from Laboratory Signals at La Paz University Hospital
First published:
19/12/2025
Spain
Data source
Human
Hospital inpatient records
Cystic Fibrosis Registry of Ireland
First published:
19/12/2025
Ireland
Data source
Human
Disease registry
International Severe Asthma Registry
First published:
19/12/2025
Argentina
Australia
Belgium
Brazil
Bulgaria
Canada
Colombia
Denmark
Ecuador
Estonia
Germany
Greece
Hungary
India
Ireland
Italy
Japan
Korea, Republic of
Kuwait
Mexico
Netherlands
Norway
Poland
Portugal
Saudi Arabia
Singapore
Spain
Taiwan
United Arab Emirates
United Kingdom
United States
Data source
Human
Disease registry
Casiopea Plus
First published:
19/12/2025
Colombia
Spain
Data source
Human
Administrative healthcare records (e.g., claims)
Hospital discharge records
Hospital inpatient records
Pharmacy dispensing records
Registration with healthcare system
Specialist ambulatory care records
Danish registries (access/analysis)
First published:
19/12/2025
Denmark
Data source
Human
Administrative healthcare records (e.g., claims)
Biobank
Birth registry
Cancer registry
Death registry
Disease registry
Drug registry
Hospital discharge records
Other
Pharmacy dispensing records
Population registry
Registration with healthcare system
Specialist ambulatory care records
Vaccination registry
Registro Italiano Sclerosi Multipla e Patologie Correlate (Italian Multiple Sclerosis and Related Disorders Register)
First published:
19/12/2025
Italy
Data source
Human
Disease registry
PHARMO Data Network
First published:
19/12/2025
Netherlands
Data source
Human
Administrative healthcare records (e.g., claims)
Birth registry
Cancer registry
Death registry
Hospital discharge records
Hospital inpatient records
Hospital outpatient visit records
Other
Pharmacy dispensing records
Primary care medical records
Hospital Episode Statistics
First published:
16/12/2025
United Kingdom
Data source
Human
Administrative healthcare records (e.g., claims)
Emergency care discharge records
Hospital inpatient records
Hospital outpatient visit records
NO LONGER EXISTS - Odense Pharmacoepidemiological Database
First published:
05/12/2025
Denmark
Data source
Human
Administrative healthcare records (e.g., claims)
Norwegian Linked Health registry at University of Oslo
First published:
28/11/2025
Norway
Data source
Human
Birth registry
Death registry
Disease registry
Hospital inpatient records
Hospital outpatient visit records
Pharmacy dispensing records
Population registry
Primary care medical records
Vaccination registry
Hillel Yaffe -Kineret
First published:
28/11/2025
Israel
Data source
Human
Emergency care discharge records
Hospital inpatient records
Hospital outpatient visit records
Other
Shamir Governmental Medical Center, part of Nationwide network (Kineret)
First published:
28/11/2025
Israel
Data source
Human
Emergency care discharge records
Hospital inpatient records
Hospital outpatient visit records
Other
Tzafon Governmental Medical Center, part of Nationwide network (Kineret)
First published:
28/11/2025
Israel
Data source
Human
Emergency care discharge records
Hospital inpatient records
Hospital outpatient visit records
Other
Barzilai Governmental Medical Center, part of Nationwide network (Kineret)
First published:
28/11/2025
Israel
Data source
Human
Emergency care discharge records
Hospital inpatient records
Hospital outpatient visit records
Other
Netherlands Cancer Registry
First published:
28/11/2025
Netherlands
Data source
Human
Cancer registry
European Porphyria Registry
First published:
28/11/2025
Belgium
France
Italy
Netherlands
Norway
Spain
Sweden
United Kingdom
Data source
Human
Disease registry
Norwegian Linked Health registry at University of Oslo, Pregnancy cohort
First published:
28/11/2025
Norway
Data source
Human
Birth registry
Hospital inpatient records
Hospital outpatient visit records
Pharmacy dispensing records
Primary care medical records
IQVIA CTcue NL Network
First published:
27/11/2025
Netherlands
Data source
Human
Emergency care discharge records
Hospital discharge records
Hospital inpatient records
Hospital outpatient visit records
Pharmacy dispensing records
Primary care medical records
Registration with healthcare system
Medicines Intelligence Data Platform
First published:
27/11/2025
Australia
Data source
Human
Administrative healthcare records (e.g., claims)
Hospital inpatient records
Other
Pharmacy dispensing records
TREAT NL/BE registry (TREatment of Atopic eczema, the Netherlands and Belgium)
First published:
27/11/2025
Belgium
Netherlands
Data source
Human
Disease registry
EUROmediCAT central database
First published:
27/11/2025
Belgium
Croatia
Denmark
France
Germany
Ireland
Italy
Malta
Netherlands
Norway
Poland
Spain
Switzerland
Data source
Human
Disease registry
aggregate Gargano Mortality Study
First published:
27/11/2025
Italy
Data source
Human
Hospital inpatient recordsCompare data sources