ERN eUROGEN registry

13/05/2024
24/03/2026
Data source
Human
Congenital anomaly registry
Disease registry
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Record completeness

Administrative details

Data source ID

1000000048

Name of data source

ERN eUROGEN registry

Data source acronym

ERN eUROGEN registry

Data holder

Data source type

Congenital anomaly registry
Disease registry

Main financial support

European public funding

Care setting

Hospital inpatient care
Hospital outpatient care
Primary care – specialist level (e.g. paediatricians)

Data source qualification

If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.

No

Data source website

Contact details

Data source regions and languages

Data source countries

Austria
Belgium
Croatia
Czechia
Denmark
Finland
France
Germany
Italy
Lithuania
Netherlands
Poland
Portugal
Spain
Sweden

Data source languages

English
Data source establishment

Data source established

Data source time span

First collection: 26/01/2022
The date when data started to be collected or extracted.

Publications

Data source publications