PHARMO Data Network

First published 01/02/2024

Last updated 19/12/2025

Data source

Human

Administrative healthcare records (e.g., claims)

Birth registry

Cancer registry

Death registry

Hospital discharge records

Hospital inpatient records

Hospital outpatient visit records

Other

Pharmacy dispensing records

Primary care medical records

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The data source contains the following information

Disease information Does the data source collect information with a focus on a specific disease? This might be a patient registry or other similar initiatives.: Yes

Disease details, other: The PHARMO Data Network is a population-based network of databases combining subnational data from different primary and secondary healthcare settings (e.g., general practices, inpatient and outpatient pharmacies, clinical laboratories, hospitals) in the Netherlands. Furthermore, we have an established structural linkage with the Cancer Registry, Pathology Registry, Perinatal Registry and Death Registry in the Netherlands.

Rare diseases Are rare diseases captured? In the European Union a rare disease is one that affects no more than 5 people in 10,000.: Yes

Pregnancy and/or neonates Does the data source collect information on pregnant women and/or neonatal subpopulation (under 28 days of age)?: Yes

Hospital admission and/or discharge: Yes

ICU admission Is information on intensive care unit admission available?: Yes

Cause of death: Not Captured

Prescriptions of medicines: Captured

Prescriptions vocabulary: ATC

Dispensing of medicines: Captured

Dispensing vocabulary: ATC

Advanced therapy medicinal products (ATMP) Is information on advanced therapy medicinal products included? A medicinal product for human use that is either a gene therapy medicinal product, a somatic cell therapy product or a tissue engineered products as defined in Regulation (EC) No 1394/2007 [Reg (EC) No 1394/2007 Art 1(1)].: No

Contraception Is information on the use of any type of contraception (oral, injectable, devices etc.) available?: Yes

Indication for use Does the data source capture information on the therapeutic indication for the use of medicinal products?: Captured

Indication vocabulary: ICD-10

Medical devices Is information on medicinal devices (e.g., pens, syringes, inhalers) available?: Yes

Administration of vaccines: Yes

Procedures Does the data source capture information on procedures (e.g., diagnostic tests, therapeutic, surgical interventions)?: Captured

Procedures vocabulary: Other

Procedures vocabulary, other: Procedures are coded according to the Dutch Hospital Data Foundation registration system for procedures which links to the Dutch Healthcare Authority (NZa) declaration codes and the Dutch Classification of Procedures (CVV codes, CBV codes, ZA codes)

Clinical measurements Is information on clinical measurements (e.g., BMI, blood pressure, height) available?: Yes

Healthcare provider Is information on the person providing healthcare (e.g., physician, pharmacist, specialist) available? The healthcare provider refers to individual health professionals or a health facility organisation licensed to provide health care diagnosis and treatment services including medication, surgery and medical devices.: Yes

Genetic data Are data related to genotyping, genome sequencing available?: Captured

Genetic data vocabulary: Other

Biomarker data Does the data source capture biomarker information? The term “biomarker” refers to a broad subcategory of medical signs ( objective indications of medical state observed from outside the patient), which can be measured accurately and reproducibly. For example, haematological assays, infectious disease markers or metabolomic biomarkers.: Captured

Biomarker data vocabulary: Other

Biomarker vocabulary, other: Biomarkers available through clinical lab data are coded according to the NHG-bepalingen. Biomarkers in oncology are captured according to the itemset list of the Netherlands Cancer Registry, if available. Biomarkers found in pathology specimen are found through free-text fields, not systematic, coded fields.

Patient-reported outcomes Is information on patient-reported outcomes (e.g., quality of life) available?: Yes

Patient-generated data Is patient-generated information (e.g., from wearable devices) available?: No

Units of healthcare utilisation Are units of healthcare utilisation (e.g., number of visits to GP per year, number of hospital days) available or can they be derived? Units of healthcare utilisation refer to the quantification of the use of services for the purpose of preventing or curing health problems.: Yes

Unique identifier for persons Are patients uniquely identified in the data source?: Yes

Diagnostic codes: Captured

Diagnosis / medical event vocabulary: ICD-10

ICD-9

ICPC

Medicinal product information: Captured

Medicinal product information collected: Active ingredient(s)

Batch number

Brand name

Dosage regime

Dose

Formulation

Package size

Route of administration

Strength

Medicinal product vocabulary: ATC

Quality of life measurements: Captured

Quality of life measurements vocabulary: other

Quality of life measurements, other: Ability to go back to medical files to obtain quality of life measures

Lifestyle factors: Captured

Lifestyle factors collected: Alcohol use

Diet

Frequency of exercise

Other

Tobacco use

Lifestyle factors included other: If recorded by the GP

Sociodemographic information: Captured

Sociodemographic information collected: Age

Gender

Sex

Socioeconomic status

PHARMO Data Network

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