Administrative details

Data source ID

40246

Name of data source

ERN RARE-LIVER prospective research registry

Data source acronym

R-LIVER rare liver disease registry

Data holder

Data source type

Disease registry
Other

Data source type, other

Prospective studies database

Main financial support

European public funding

Care setting

Hospital inpatient care
Hospital outpatient care
Primary care – specialist level (e.g. paediatricians)
Secondary care – specialist level (ambulatory)

Data source qualification

If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.

No

Data source website

Contact details

Data source regions and languages

Data source countries

Argentina
Austria
Belgium
Canada
Croatia
Czechia
Denmark
France
Germany
Greece
Hungary
Israel
Italy
Lithuania
Moldova, Republic of
Netherlands
Poland
Portugal
Romania
Slovakia
Spain
Sweden
Switzerland
United Kingdom

Data source languages

English
Data source establishment

Data source established

Data source time span

First collection: 01/05/2017
The date when data started to be collected or extracted.

Publications

Data source publications

Studies

List of studies that have been conducted using the data source