German Cystic fibrosis registry - Muko.web

First published 01/02/2024

Last updated 17/10/2024

Data source

Human

Disease registry

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Administrative details

PURI: https://redirect.ema.europa.eu/resource/48774

Data source ID: 48774

Name of data source: German Cystic fibrosis registry - Muko.web

Data source acronym: German CF Registry

Data holder: Mukoviszidose Institut

Data source type: Disease registry

Main financial support: Funding by own institution

Care setting: Primary care – specialist level (e.g. paediatricians)

Data source qualification If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.: No

Data source website: https://www.muko.info/was-wir-tun/register

Contact details

Sylvia Hafkemeyer

Main

Shafkemeyer@muko.info

Lutz Nährlich

Alternate

lutz.naehrlich@paediat.med.uni-giessen.de

Data source regions and languages

Data source countries: Germany

Data source languages: German

Data source establishment

Data source established: 15/06/1995

Data source time span: First collection: 15/06/1995
The date when data started to be collected or extracted.

Publications

Data source publications