Population Qualitative Data

Population age groups

Paediatric Population (< 18 years)
Preterm newborn infants (0 – 27 days)
Term newborn infants (0 – 27 days)
Infants and toddlers (28 days – 23 months)
Children (2 to < 12 years)
Adolescents (12 to < 18 years)
Adults (18 to < 46 years)
Adults (46 to < 65 years)
Elderly (≥ 65 years)
Adults (65 to < 75 years)
Adults (75 to < 85 years)
Adults (85 years and over)

Estimated percentage of the population covered by the data source in the catchment area

99% of the population covered. Population age stratification can be found on Figure 1.2 in the UK CF Registry 2022 National report (https://www.cysticfibrosis.org.uk/about-us/uk-cf-registry/reporting-and-resources)

Description of the population covered by the data source in the catchment area whose data are not collected (e.g., people who are registered only for private care)

It is not recorded how many patients refuse consent to the registry. It is thought not many as the specialist centres ensure all patients are registered.
Population

Population size

11148

Active population size

11148