Access and validation

Governance details

Documents or webpages that describe the overall governance of the data source and processes and procedures for data capture and management, data quality check and validation results (governing data access or utilisation for research purposes).
https://cprd.com/data-quality

Biospecimen access

Are biospecimens available in the data source (e.g., tissue samples)?

Yes

Access to subject details

Can individual patients/practitioners/practices included in the data source be contacted?

No

Description of data collection

Based on data from the EMIS (CPRD Aurum) or VISION (CPRD GOLD) software systems used by GPs in the UK primary care NHS.
Event triggering registration

Event triggering registration of a person in the data source

Practice registration

Event triggering de-registration of a person in the data source

Death
Emigration
Practice deregistration

Event triggering creation of a record in the data source

Patient consultation, hospital correspondence
Data source linkage

Linkage

Is the data source described created by the linkage of other data sources (prelinked data source) and/or can the data source be linked to other data source on an ad-hoc basis?

Yes

Linkage description, possible linkage

Anonymised primary care patient data can be individually linked to secondary care and other health and area-based datasets. This linkage enables CPRD to provide a fuller picture of the patient care record to support vital public health research, informing advances in patient safety and delivery of care. CPRD is expanding its healthcare data and research services to increase both the cover of primary care data and the number of datasets that are linked and made available on a routine basis to the research community. CPRD Aurum are linked to patient-level health data b ya trusted third party, NHS Digital,using NHS number,exact dateofbirth, sex and patient residence postcode. CPRD does not receive or hold patientidentifiers including name,full date of birth,postcode and NHSnumber. Identifiers are removed prior to transfer of data to CPRD to protect patient confidentiality.

Linked data source 1

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

Cancer data from NHS England National Disease Registration Service (NDRS) (formerly Public Health England (PHE))

Linkage variable

The variables patid and pracid can be used for linkage purposes.

Linkage completeness

Completeness of linkages and timelag with CPRD Aurum/GOLD primary care data varies across the linked datasets.

Linked data source 2

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

COVID-19 data

Linkage variable

The variables patid and pracid can be used for linkage purposes.

Linkage completeness

Completeness of linkages and timelag with CPRD Aurum/GOLD primary care data varies across the linked datasets.

Linked data source 3

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

Data from NHS England (Hospital Episode Statistics, ONS Death registration data)

Linkage variable

The variables patid and pracid can be used for linkage purposes.

Linkage completeness

Completeness of linkages and timelag with CPRD Aurum/GOLD primary care data varies across the linked datasets.

Linked data source 4

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

Small area level data

Linkage variable

The variables patid and pracid can be used for linkage purposes.

Linkage completeness

Completeness of linkages and timelag with CPRD Aurum/GOLD primary care data varies across the linked datasets.
Data management specifications that apply for the data source

Data source refresh

Quarterly

Informed consent for use of data for research

Other

Informed consent, other

opt-out

Possibility of data validation

Can validity of the data in the data source be verified (e.g., access to original medical charts)?

No

Data source preservation

Are records preserved in the data source indefinitely?

Yes

Approval for publication

Is an approval needed for publishing the results of a study using the data source?

Yes
Common Data Model (CDM) mapping

CDM mapping

Has the data source been converted (ETL-ed) to a common data model?

Yes

CDM Mappings

CDM name (other)

Other

Data source ETL CDM version

Study specific

Data source ETL CDM version

OMOP version 5.3.2,