Population Qualitative Data

Population age groups

Paediatric Population (< 18 years)
Infants and toddlers (28 days – 23 months)
Children (2 to < 12 years)
Adolescents (12 to < 18 years)

Estimated percentage of the population covered by the data source in the catchment area

As of May 2023 overall in Pharmachild, 11,796 patients in total were registered in the census registry since January 2017 from 98 PRINTO centers in 32 countries. Clinical and safety data were provided for 8,274 out of 11,796 patients (70.1%) belonging to 86 participating centers. Sixty out of eighty-six centers (61.2%) provided at least 70% safety data of their local JIA patients, and the median was 55 patients per center. Prospective data were collected for a total of 3,070 patients.

Description of the population covered by the data source in the catchment area whose data are not collected (e.g., people who are registered only for private care)

Regional sub-set - This project is conducted by the participating centres of the more than 50 countries belonging to the Paediatric Rheumatology INternational Trials Organisation (PRINTO), or the Pediatric Rheumatology European Society (PRES). Data capture is restricted to participating centres in each country, and thus do not represent nation-wide data sets.
Population

Population size

10700

Active population size

9200

Population by age group

Age groupPopulation sizeActive population size
Paediatric Population (< 18 years)
10700
9200
Median observation time

Median time (years) between first and last available records for unique individuals

5.50

Median time (years) between first and last available records for unique active individuals (alive and currently registered)

5.00