The Swedish Multiple Sclerosis Registry

09/06/2026
09/06/2026
Data source
Human
Disease registry
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Population Qualitative Data

Population age groups

  • Paediatric Population (< 18 years)
    • Children (2 to < 12 years)
    • Adolescents (12 to < 18 years)
  • Adult and elderly population (≥18 years)
    • Adults (18 to < 65 years)
      • Adults (18 to < 46 years)
      • Adults (46 to < 65 years)
    • Elderly (≥ 65 years)
      • Adults (65 to < 75 years)
      • Adults (75 to < 85 years)
      • Adults (85 years and over)

Estimated percentage of the population covered by the data source in the catchment area

Estimated coverage of 85 % of Swedish prevalent multiple sclerosis population

Description of the population covered by the data source in the catchment area whose data are not collected (e.g., people who are registered only for private care)

All neurology units report, but patient may opt out and clinicians are not obliged to contribute by registering their patients.
Family linkage

Family linkage available in the data source permanently or can be created on an ad hoc basis

Ad hoc
Population

Population size

25372

Active population size

20500
Median observation time

Median time (years) between first and last available records for unique individuals

12.00

Median time (years) between first and last available records for unique active individuals (alive and currently registered)

10.00