DARWIN EU® - Enhanced Preparedness of the DARWIN EU Network for regulatory questions in oncology – DARWIN OncoNet

ENCePP Code of conduct

Yes

Data sources

• Data source(s):
  Estonian Biobank

  Clinical Data Warehouse of the Bordeaux University Hospital

  UK Biobank

  InGef Research Database

  Semmelweis University Clinical Data

  Papageorgiou General Hospital Database

  Croatia National Public Health Information System (Nacionalni javnozdravstveni informacijski sustav)

  Danish Health Data Registries

  Hospital District of Helsinki and Uusimaa patient cohort (FinOMOP)

  TaUH patient cohort (FinOMOP)

  Research Repository @Fondazione IRCCS Ca' Granda Ospedale Maggiore Policlinico

  The Cancer Registry of Norway

  Institut Municipal d'Assistència Sanitària Information System / Hospital del Mar / PSMAR / (Hospital del Mar Information System)

  Health Impact - Swedish Population Evidence Enabling Data-linkage

  Netherlands Cancer Registry
• Data source(s), other:
  Finnish Care Register for Health Care, Auria Clinical Informatics, Hospital Universitario 12 de Octubre

Use of a Common Data Model (CDM)

• CDM mapping:
  Yes

CDM Mappings

• CDM name:
  OMOP
• CDM website:
  https://www.ohdsi.org/Data-standardization/

• CDM version:
  https://ohdsi.github.io/CommonDataModel/cdm54.html

Data quality specifications

• Check conformance:
  Unknown
• Check completeness:
  Unknown
• Check stability:
  Unknown
• Check logical consistency:
  Unknown

Data characterisation

• Data characterisation conducted:
  No