DARWIN EU® - Acute myeloid leukaemia: incidence, patient characteristics, treatments, and survival in the period 2015–2024

ENCePP Code of conduct

Yes

Data sources

• Data source(s):
  Danish Health Data Registries

  Hospital District of Helsinki and Uusimaa patient cohort (FinOMOP)

  The Cancer Registry of Norway

  Croatia National Public Health Information System (Nacionalni javnozdravstveni informacijski sustav)

  InGef Research Database

  Netherlands Cancer Registry

  The Information System for Research in Primary Care (SIDIAP)

  IMI 116026 HARMONY; IMI 945406 HARMONY PLUS - HARMONY Big Data Platform
• Data source(s), other:
  Finnish Care Register for Health Care, Hospital Universitario 12 de Octubre
• Data sources (types):
  Disease registry

  Electronic healthcare records (EHR)

Use of a Common Data Model (CDM)

• CDM mapping:
  Yes

CDM Mappings

• CDM name:
  OMOP
• CDM website:
  https://www.ohdsi.org/Data-standardization/

• CDM version:
  https://ohdsi.github.io/CommonDataModel/index.html

Data quality specifications

• Check conformance:
  Unknown
• Check completeness:
  Unknown
• Check stability:
  Unknown
• Check logical consistency:
  Unknown

Data characterisation

• Data characterisation conducted:
  No