DARWIN EU® - Incidence, period prevalence, and characterisation of individuals with paediatric pulmonary arterial hypertension

ENCePP Code of conduct

Yes

Data sources

• Data source(s):
  Danish Health Data Registries

  Clinical Data Warehouse of the Bordeaux University Hospital

  Hospital District of Helsinki and Uusimaa patient cohort (FinOMOP)

  InGef Research Database

  Norwegian Linked Health registry at University of Oslo
• Data sources (types):
  Administrative healthcare records (e.g., claims)

  Disease registry

  Electronic healthcare records (EHR)

Use of a Common Data Model (CDM)

• CDM mapping:
  Yes

CDM Mappings

• CDM name:
  OMOP
• CDM website:
  https://www.ohdsi.org/Data-standardization/

• CDM version:
  https://ohdsi.github.io/CommonDataModel/index.html

Data quality specifications

• Check conformance:
  Unknown
• Check completeness:
  Unknown
• Check stability:
  Unknown
• Check logical consistency:
  Unknown

Data characterisation

• Data characterisation conducted:
  No