Rare Eye Diseases Registry

First published 07/07/2025

Last updated 07/07/2025

Data source

Human

Other

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Administrative details

Data source ID: 1000000646

Name of data source: Rare Eye Diseases Registry

Data source acronym: REDgistry

Data holder: European Reference Network dedicated to Rare Eye Diseases (ERN-EYE)

Data source type: Other

Data source type, other: Rare Eye Diseases Registry

Main financial support: European public funding

Care setting: Hospital outpatient care

Data source qualification If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.: No

Data source website: redgistry.eu

Contact details

Isabella Vacchi isabella-anna.vacchi@chru-strasbourg.fr

Main

isabella-anna.vacchi@chru-strasbourg.fr

Data source regions and languages

Data source countries: Belgium

Estonia

France

Ireland

Italy

Netherlands

Data source languages: English