Clinical Investigation and research for the Rendu Osler Cohort

09/04/2025
26/08/2026
Data source
Human
Disease registry
Drug registry
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Population Qualitative Data

Population age groups

  • Paediatric Population (< 18 years)
    • Neonate
      • Preterm newborn infants (0 – 27 days)
      • Term newborn infants (0 – 27 days)
    • Infants and toddlers (28 days – 23 months)
    • Children (2 to < 12 years)
    • Adolescents (12 to < 18 years)
  • Adult and elderly population (≥18 years)
    • Adults (18 to < 65 years)
      • Adults (18 to < 46 years)
      • Adults (46 to < 65 years)
    • Elderly (≥ 65 years)
      • Adults (65 to < 75 years)
      • Adults (75 to < 85 years)
      • Adults (85 years and over)

Estimated percentage of the population covered by the data source in the catchment area

Based on an estimated 68,290,000 people in France and a prevalence of 1 in 6,000 individuals, the theoretical number of people affected by hereditary Haemorrhagic Telangiectasia is approximately 11,382.
The CIROCO database currently includes 6,399 unique individuals, representing an estimated 56.22% coverage of the affected population
Family linkage

Family linkage available in the data source permanently or can be created on an ad hoc basis

Permanently

Family linkage available between the following persons

Father-child
Mother-child
Population

Population size

9074

Active population size

6962

Population by age group

Age group Population size Active population size
Children (2 to < 12 years)
99
86
Adolescents (12 to < 18 years)
237
194
Adult and elderly population (≥18 years)
8738
6682
Median observation time

Median time (years) between first and last available records for unique individuals

9.00