A Retrospective Data Collection and Analysis Study of Patients With Sickle Cell Disease (SCD) Who Have Been Treated With Oxbryta® (Voxelotor)

14/10/2024
14/10/2024
EU PAS number:
EUPAS1000000334
Study
Ongoing

ENCePP Code of conduct

N/A
Data sources

Data source(s), other

Rutgers Cancer Institute of New Jersey
Brigham and Women's Hospital
Montefiore Medical Center
Central Michigan University/Children's Hospital of Michigan
UT Southwestern Medical Center
Levine Cancer Institute
Duke University Hospital
University of Connecticut Health
University of Texas Health Science Center at Houston

Data sources (types)

Non-interventional study
Use of a Common Data Model (CDM)

CDM mapping

No
Data quality specifications

Check conformance

Yes

Check completeness

Yes

Check stability

Yes

Check logical consistency

Yes
Data characterisation

Data characterisation conducted

Unknown
Procedures
No information provided.