Prospective, long-term, observational study (patient registry) of paediatric myotonic disorders from birth to less than six years of age who are treated with mexiletine (PEGASUS Study)

ENCePP Code of conduct

No

Use of a Common Data Model (CDM)

• CDM mapping:
  No

Data quality specifications

• Check conformance:
  Unknown
• Check completeness:
  Unknown
• Check stability:
  Unknown
• Check logical consistency:
  Unknown

Data characterisation

• Data characterisation conducted:
  No