Population Qualitative Data

Population age groups

Adult and elderly population (>18 years)

Estimated percentage of the population covered by the data source in the catchment area

Sources provide different prevalence estimates (e.g. 80 patients per 100,000 or 0.21% of the population). The number of ILD patients in Germany therefore ranges from 64,000 to 168,000. INSIGHTS-ILD documents 900 of them.

Description of the population covered by the data source in the catchment area whose data are not collected (e.g., people who are registered only for private care)

Patients not receiving specialist care are not documented. INSIGHTS-ILD investigators are pulmonologists, experts in the management of ILD patients. Patients without written informed consent and those not available for long-term follow-up are not eligible for documentation.
Population

Population size

725

Active population size

700
Median observation time

Median time (years) between first and last available records for unique individuals

2.00

Median time (years) between first and last available records for unique active individuals (alive and currently registered)

1.69