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Jacqui van Rens
Main
Lutz Naehrlich
Alternate
Publications
Data source publications
- Effectiveness if lumacaftor/ivacaftor initiation in children with CF aged 2 through 5 years on disease progression: interim results from an ongoing registry-based study
- Cystic fibrosis in Europe: improved lung function & longevity: reasons for cautious optimism, but challenges remain
- A multinational report on SARS-COV-2 infection outcomes in people with CF and Aspergillus infection or ABPA
- Nonsense mutations accelerate lung disease and decrease survival of cystic fibrosis children
- Association of Oxygen Therapy with the Natural Disease Progression of Cystic Fibrosis: A Multi-State Model of the European Cystic Fibrosis Society Patient Registry
- Risk factors for forced expiratory volume in 1 s decline in European patients with cystic fibrosis: data from the European Cystic Fibrosis Society Patient Registry
- Clinical outcomes associated with Achromobacter species infection in people with cystic fibrosis
- Cirrhosis and portal hypertension in cystic fibrosis in compound heterozygous people with harboring one F508del CFTR gene mutation
- Prevalence, trends and outcomes of long-term inhaled antibiotic treatment in people with cystic fibrosis without chronic Pseudomonas aeruginosa infection – A European cystic fibrosis patient registry data analysis
- Disease severity of people with cystic fibrosis carrying residual function mutations: Data from the ECFS Patient Registry
- Geographic distribution and phenotype of European people with Cystic Fibrosis carrying A1006E mutation
- Factors for severe outcomes following SARS-CoV-2 infection in people with cystic fibrosis in Europe
- Incidence of SARS-CoV-2 in people with cystic fibrosis in Europe between February and June 2020
- Survival estimates in European cystic fibrosis patients and the impact of socioeconomic factors: a retrospective registry Cohort study
- Dornase alfa and rate of lung function decline in European patients with cystic fibrosis: a retrospective registry cohort study
- The c.3140-26A>G Variant of the CFTR Gene in homozygous state causes mild cystic fibrosis Overview of longitudinal clinical data of the patient managed in our centre and review of the literature
- Cystic Fibrosis Related Diabetes in Europe/ Prevalence, Risk Factors and Outcome
- Changing Epidemiology of the respiratory bacteriology of patients with cystic fibrosis from the European Cystic Fibrosis Society Patient Registry
- Characteristics of Cystic Fibrosis-related diabetes: Data from two different sources, the European Cystic Fibrosis Society Patient registry and German/Austrian diabetes prospective follow-up registry
- Cystic fibrosis mortality in childhood. Data from European Cystic Fibrosis Society Patient Registry
- Creating longitudinal datasets and cleaning existing data identifiers in a cystic fibrosis registry using a novel Bayesian probabilistic approach from astronomy
- Effect of allergic bronchopulmonary aspergillosis on FEV1 in children and adolescents with cystic fibrosis: a European Cystic Fibrosis Society Patient Registry analysis
- Year to year change in FEV1 in patients with cystic fibrosis and different mutation classes
- Epidemiology of nontuberculous mycobacteria (NTM) amongst individuals with cystic fibrosis (CF)
- International prospective study of distal intestinal obstruction syndrome in cystic fibrosis: Associated factors and outcome
- Future trends in Cystic Fibrosis demography in 34 European countries
- The relative frequency of CFTR mutation classes in European patients with cystic fibrosis
- Multi-Country Estimate of Different Manifestations of Aspergillosis in Cystic Fibrosis
- The European Cystic Fibrosis Society Patient Registry: valuable lessons learned on how to sustain a disease registry
- Factors associated with FEV1 decline in cystic fibrosis: analysis of the data of the ECFS Patient Registry
- Evidence of diminished FEV1 and FVC in 6-year-olds followed in the European cystic fibrosis patient registry, 2007-2009
- A new era in the treatment of cystic fibrosis: correction of the underlying CFTR defect
- Epidemiology of Cystic Fibrosis Lung Disease progression in adolescents
- Reference percentiles for FEV(1) and BMI in European children and adults with cystic fibrosis
- Cystic fibrosis across Europe: EuroCareCF analysis of demographic data from 35 countries
- Comparative demographics of the European cystic fibrosis population: a cross-sectional database analysis
- Publications section on the ECSF Patient Registry website