DARWIN EU® Natural history of dermatomyositis (DM) and polymyositis (PM) in adults and paediatric populations

ENCePP Code of conduct

No

Data sources

• Data source(s):
  The Information System for Research in Primary Care (SIDIAP)

  IQVIA Disease Analyzer Germany

  Clinical Data Warehouse of the Bordeaux University Hospital

  Clinical Practice Research Datalink (CPRD) GOLD

  Estonian Biobank
• Data sources (types):
  Electronic healthcare records (EHR)

  Other
• Data sources (types), other:
  Secondary care, Outpatient specialist setting, Hospital care

Use of a Common Data Model (CDM)

• CDM mapping:
  Yes

CDM Mappings

• CDM name:
  OMOP
• CDM website:
  https://www.ohdsi.org/Data-standardization/

Data quality specifications

• Check conformance:
  Unknown
• Check completeness:
  Unknown
• Check stability:
  Unknown
• Check logical consistency:
  Unknown

Data characterisation

• Data characterisation conducted:
  No