Closing the loop for Fabry disease and Pompe disease in the UK (RARE)

Documents

Study protocol

Study results

Study report

Other information

ENCePP Seal

The use of the ENCePP Seal has been discontinued since February 2025. The ENCePP Seal fields are retained in the display mode for transparency but are no longer maintained.

Composition of steering group and observers

Optimum Patient Care_QI Protocol_Rare Disease_Steering Committee Composition_September 2022_V1.1_CLEAN VERSION