TED-R13-002: A Prospective, Multi-center Registry for Patients with Short Bowel Syndrome (TED-R13-002: SBS Registry)

ENCePP Code of conduct

No

Data sources

• Data sources (types):
  Disease registry

  Other
• Data sources (types), other:
  Prospective patient-based data collection, Exposure registry, In the USA the Surveillance Epidemiology and End Results (SEER) Cancer Registry. For other regions of the world the World Health Organization GLOBOCAN data. The National Death Index in the USA and other death data sources for other countries, as available

Use of a Common Data Model (CDM)

• CDM mapping:
  No

Data quality specifications

• Check conformance:
  Unknown
• Check completeness:
  Unknown
• Check stability:
  Unknown
• Check logical consistency:
  Unknown

Data characterisation

• Data characterisation conducted:
  No