TED-R13-002: A Prospective, Multi-center Registry for Patients with Short Bowel Syndrome (TED-R13-002: SBS Registry)

ENCePP Code of conduct

No

Data sources

• Data sources (types):
  Disease registry

  Other
• Data sources (types), other:
  Prospective patient-based data collection. US and global cancer data sources (for example, population-based registries, healthcare claims databases, or federated electronic health record networks with validated oncology outcomes).

Use of a Common Data Model (CDM)

• CDM mapping:
  No

Data quality specifications

• Check conformance:
  Unknown
• Check completeness:
  Unknown
• Check stability:
  Unknown
• Check logical consistency:
  Unknown

Data characterisation

• Data characterisation conducted:
  No