Establish an EU catalogue of sources of real-world data, characterised by a common set of metadata and data quality measurements

ENCePP Code of conduct

No

Data sources

• Data source(s):
  BIFAP - Base de Datos para la Investigación Farmacoepidemiológica en el Ámbito Público (Pharmacoepidemiological Research Database for Public Health Systems)

  Pedianet

  PedNet Haemophilia registry

  Hospital Episode Statistics

  Sweden National Prescribed Drugs Register / Läkemedelsregistret

  Danish registries (access/analysis)

  European network of population-based registries for the epidemiological surveillance of congenital anomalies
• Data sources (types):
  Administrative healthcare records (e.g., claims)

  Disease registry

  Drug dispensing/prescription data

  Electronic healthcare records (EHR)

  Other
• Data sources (types), other:
  Prospective patient-based data collection

Use of a Common Data Model (CDM)

• CDM mapping:
  No

Data quality specifications

• Check conformance:
  Unknown
• Check completeness:
  Unknown
• Check stability:
  Unknown
• Check logical consistency:
  Unknown

Data characterisation

• Data characterisation conducted:
  No