Comparative Effectiveness and Safety of Drugs used in Rare Neuromuscular and Neurodegenerative Diseases (CAESAR)

ENCePP Code of conduct

No

Data sources

• Data source(s):
  Mortality Information System

  Drug claims information system

  Hospital Information System

  Healthcare Emergency Information System

  ARS Toscana
• Data source(s), other:
  MIS, PHARM, HIS, HEIS, ARS
• Data sources (types):
  Administrative data (e.g. claims)

  Disease registry

Use of a Common Data Model (CDM)

• CDM mapping:
  No

Data quality specifications

• Check conformance:
  Unknown
• Check completeness:
  Unknown
• Check stability:
  Unknown
• Check logical consistency:
  Unknown

Data characterisation

• Data characterisation conducted:
  No