THE ALPHA-MANNOSIDOSIS REGISTRY: A multi-centre, multi-country, non interventional, prospective cohort, in alpha-mannosidosis patients (SPARKLE)

First published 22/03/2019

Last updated 02/07/2024

EU PAS number:

EUPAS29038

Study

Ongoing

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Documents

Study protocol

Initial protocol

CLI-LMZYMAA1-12-APP 16.1.1-00465

English (566.24 KB - PDF)View document

Updated protocol

CLI-LMZYMAA1-12-APP 16.1.1-00465_Final version approved

First published: 22/02/2024

English (537.25 KB - PDF)View document

Study results

Study report

Other information

ENCePP Seal

ENCePP Seal documents