Follow-Up Survey of stakeholder actions following the EMA patient registry workshops

ENCePP Code of conduct

No

Data sources

• Data sources (types):
  Other
• Data sources (types), other:
  The survey was conducted by the EMA Patient Registries Initiative. The survey was sent to the participants from the 4 workshops hosted by the EMA.Please find the link to the EMA Patient Registries webpage:https://www.ema.europa.eu/en/human-regulatory/post-authorisation/patient-registries

Use of a Common Data Model (CDM)

• CDM mapping:
  No

Data quality specifications

• Check conformance:
  Unknown
• Check completeness:
  Unknown
• Check stability:
  Unknown
• Check logical consistency:
  Unknown

Data characterisation

• Data characterisation conducted:
  No