Disease characteristics and outcomes of pulmonary arterial hypertension in children and adolescents in real-world clinical settings: Sytematic Review of prospective, observational registries (Pediatric Systematic Review)

ENCePP Code of conduct

No

Data sources

• Data source(s), other:
  Reveal United States, NL national registry Netherlands, FR pediatric registry France, TOPP United States
• Data sources (types):
  Other
• Data sources (types), other:
  Aggregated tables from the contributing registries

Use of a Common Data Model (CDM)

• CDM mapping:
  No

Data quality specifications

• Check conformance:
  Unknown
• Check completeness:
  Unknown
• Check stability:
  Unknown
• Check logical consistency:
  Unknown

Data characterisation

• Data characterisation conducted:
  No