Galactosemia Patient Registry

01/02/2024
04/03/2026
Data source
Human
Disease registry
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Record completeness

Administrative details

Data source ID

18473

Name of data source

Galactosemia Patient Registry

Data source acronym

GalNet

Data holder

Data source type

Disease registry

Main financial support

Funds from patients organisations, charity and foundations

Care setting

Hospital outpatient care

Data source qualification

If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.

No

Data source website

Contact details

Data source regions and languages

Data source countries

Australia
Austria
Belgium
Brazil
Croatia
Estonia
France
Germany
Greece
Ireland
Israel
Italy
Lithuania
Netherlands
Portugal
Spain
Switzerland
United Kingdom
United States

Data source languages

English
Data source establishment

Data source established

Data source time span

First collection: 01/01/2014
The date when data started to be collected or extracted.

Publications

Data source publications