Multiple Sclerosis DataConnect

01/02/2024
17/10/2024
Data source
Human
Hospital inpatient records
Other

Record completeness

Administrative details

Data source ID

1111203

Name of data source

Multiple Sclerosis DataConnect

Data source acronym

MSDC

Data holder

Data source type

Hospital inpatient records
Other

Data source type, other

Electronic health records, In the Rehabilitation and MS Center in Pelt (Belgium) clinical data is collected by neurologists. EPTS are measured and MRI scans are taken once a year (in general). The clinical data is entered in iMed and the EPD (NexuzHealth) and linked to the EPTS and MRI features, which results in the so called RADIOMCS-EPOMICS dataset. We are working on integrating the data collected by the physiotherapists, psychologists, speech therapists and occupational therapists too, as well as patient-reported outcomes, but currently, the MSDC dataset only consists of the RADIOMICS-EPOMICS dataset.

Main financial support

Funding from industry or contract research

Care setting

Primary care – specialist level (e.g. paediatricians)

Data source qualification

If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.

No

Contact details

Data source regions and languages

Data source countries

Belgium

Data source languages

Dutch
English

Data source regions

Antwerpen
Limburg
Oost-Vlaanderen
Vlaams-Brabant
West-Vlaanderen
Data source establishment

Data source established

Data source time span

First collection: 01/01/2017
The date when data started to be collected or extracted.