Access and validation

Governance details

Documents or webpages that describe the overall governance of the data source and processes and procedures for data capture and management, data quality check and validation results (governing data access or utilisation for research purposes).
https://www.kanta.fi/jarjestelmakehittajat/reseptin-toiminnalliset-maarittelyt

Biospecimen access

Are biospecimens available in the data source (e.g., tissue samples)?

No

Access to subject details

Can individual patients/practitioners/practices included in the data source be contacted?

No

Description of data collection

Data collection is encounter-based. When a patient has electronic prescription medicine dispensed from a community pharmacy, the necessary data from the dispension will be transferred automatically to Lääketoimitukset
Event triggering registration

Event triggering registration of a person in the data source

Birth
Immigration
Residency obtained

Event triggering creation of a record in the data source

Data collection is encounter-based. When a patient has electronic prescription medicine dispensed from a community pharmacy, the necessary data from the dispension will be transferred automatically to Lääketoimitukset
Data source linkage

Linkage

Is the data source described created by the linkage of other data sources (prelinked data source) and/or can the data source be linked to other data source on an ad-hoc basis?

Yes

Linkage description, possible linkage

It is possible to link Lääketoimitukset to all Other Finnish registers through the personal identification number. As such it is not possible to provide a full list but here are some examples of Other commonly linked registers for research purposes:
- Care Register for Health Care (Contains information on secondary care health care visits, diagnoses and procedures)
- The Medical Birth Register (The register has relevant information on pregnancies that has lasted at least 22 weeks or the infant's birth weight was at least 500 g in Finland at home or in a hospital. This register includes linkage between infant and mOther)
- The Cause of Death Register (Contains information on date and cause of death)
- Population Information System (Contains information on date of birth and death, immigration and emigration)
Link to the Finnish Data Resource Catalog (mainly in Finnish): https://aineistokatalogi.fi/catalog

Linked data source 1

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

Care Register for Health Care (Contains information on secondary care health care visits, diagnoses and procedures)

Linkage strategy

Deterministic

Linkage variable

Personal identification number

Linkage completeness

100%

Linked data source 2

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

Population Information System (Contains information on date of birth and death, immigration and emigration)

Linkage variable

Personal identification number

Linkage completeness

100%

Linked data source 3

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

The Cause of Death Register (Contains information on date and cause of death)

Linkage variable

Personal identification number

Linkage completeness

100%

Linked data source 4

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

The Medical Birth Register (The register has relevant information on pregnancies that has lasted at least 22 weeks or the infant's birth weight was at least 500 g in Finland at home or in a hospital. This register includes linkage between infant and mOther)

Linkage variable

Personal identification number

Linkage completeness

100%
Data management specifications that apply for the data source

Data source refresh

Monthly

Informed consent for use of data for research

Other

Informed consent, other

Option to opt out

Possibility of data validation

Can validity of the data in the data source be verified (e.g., access to original medical charts)?

No

Data source preservation

Are records preserved in the data source indefinitely?

No

Data source preservation length

20 years

Approval for publication

Is an approval needed for publishing the results of a study using the data source?

Yes
Common Data Model (CDM) mapping

CDM mapping

Has the data source been converted (ETL-ed) to a common data model?

No