Access and validation

Governance details

Documents or webpages that describe the overall governance of the data source and processes and procedures for data capture and management, data quality check and validation results (governing data access or utilisation for research purposes).
https://thl.fi/fi/tilastot-ja-data/aineistot-ja-palvelut/tilastojen-laatu-ja-periaatteet/laatuselosteet/esh

Biospecimen access

Are biospecimens available in the data source (e.g., tissue samples)?

No

Access to subject details

Can individual patients/practitioners/practices included in the data source be contacted?

No

Description of data collection

Data collection is encounter-based. Data on patient's outpatient visits and inpatient stays are recorded within health care provider's information systems and electronically transferred to Hilmo.
Event triggering registration

Event triggering registration of a person in the data source

Other

Event triggering registration of a person in the data source, other

First outpatient visit to a public healthcare provider or inpatient stay

Event triggering creation of a record in the data source

Outpatient visit, admission and discharge from inpatient care (specialized care)
Data source linkage

Linkage

Is the data source described created by the linkage of other data sources (prelinked data source) and/or can the data source be linked to other data source on an ad-hoc basis?

Yes

Linkage description, possible linkage

It is possible to link Terveys-Hilmo to Other Finnish registers through the personal identification number. Examples of Other Finnish national health care registers are:
- Register of Primary Health Care Visits (Contains information on primary care health care visits and diagnoses)
-Prescription Registers (Contains information on prescription medication dispensed from community pharmacies)
- The Medical Birth Register (The register has relevant information on pregnancies that has lasted at least 22 weeks or the infant's birth weight was at least 500 g in Finland at home or in a hospital. This register includes linkage between infant and mOther)
- The Cause of Death Register (Contains information on date and cause of death)

Linked data source 1

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

Prescription Registers (Contains information on prescription medication dispensed from community pharmacies)

Linkage strategy

Deterministic

Linkage variable

Personal identification number

Linkage completeness

100%

Linked data source 2

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

Register of Primary Health Care Visits (Contains information on primary care health care visits and diagnoses)

Linkage strategy

Deterministic

Linkage variable

Personal identification number

Linkage completeness

100%

Linked data source 3

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

The Cause of Death Register (Contains information on date and cause of death)

Linkage strategy

Deterministic

Linkage variable

Personal identification number

Linkage completeness

100%

Linked data source 4

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

The Medical Birth Register (The register has relevant information on pregnancies that has lasted at least 22 weeks or the infant's birth weight was at least 500 g in Finland at home or in a hospital. This register includes linkage between infant and mOther)

Linkage strategy

Deterministic

Linkage variable

Personal identification number

Linkage completeness

100%
Data management specifications that apply for the data source

Data source refresh

Monthly
February

Informed consent for use of data for research

Not Required

Possibility of data validation

Can validity of the data in the data source be verified (e.g., access to original medical charts)?

Yes

Data source preservation

Are records preserved in the data source indefinitely?

Yes

Approval for publication

Is an approval needed for publishing the results of a study using the data source?

Yes

Data source last refresh

Common Data Model (CDM) mapping

CDM mapping

Has the data source been converted (ETL-ed) to a common data model?

Yes

CDM Mappings

Data source ETL CDM version

5.4

Data source ETL frequency

12,00 months

Data source ETL status

Completed