Administrative details

Data source ID

1111182

Name of data source

European Rare Kidney Disease Registry

Data source acronym

ERKReg

Data holder

Data source type

Disease registry

Main financial support

European public funding

Care setting

Primary care – specialist level (e.g. paediatricians)
Secondary care – specialist level (ambulatory)
Hospital inpatient care
Hospital outpatient care

Data source qualification

If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.

No

Data source website

Contact details

Data source regions and languages

Data source countries

Austria
Belgium
Croatia
Czechia
Denmark
Estonia
France
Germany
Greece
Hungary
Iran, Islamic Republic of
Ireland
Italy
Latvia
Lithuania
Netherlands
Norway
Poland
Portugal
Romania
Russian Federation
Serbia
Slovenia
Spain
Türkiye
United Arab Emirates
United Kingdom

Data source languages

English
Data source establishment

Data source established

Data source time span

First collection: 01/01/2019
The date when data started to be collected or extracted.