Unidade Local de Saúde de Matosinhos

01/02/2024
19/02/2026
Data source
Human
Administrative healthcare records (e.g., claims)
Emergency care discharge records
Hospital discharge records
Hospital inpatient records
Hospital outpatient visit records
Pharmacy dispensing records
Primary care medical records
Specialist ambulatory care records
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Access and validation

Governance details

Documents or webpages that describe the overall governance of the data source and processes and procedures for data capture and management, data quality check and validation results (governing data access or utilisation for research purposes).
Serviços Partilhados do Ministério da Saúde

Biospecimen access

Are biospecimens available in the data source (e.g., tissue samples)?

No

Biospecimen access conditions

Upon request and approval by the local Ethics Committee

Access to subject details

Can individual patients/practitioners/practices included in the data source be contacted?

Yes

Description of data collection

This dataset consists of EHR data routinely generated by healthcare professionals at ULSM during the provision of standard care. The data are entered by physicians, nurses, and other clinical staff. Most EHR systems used are official national public platforms (such as SONHO and SINUS), complemented by additional systems from third-party vendors. The complete set of data recorded within ULSM’s EHR systems is available for research purposes under appropriate governance procedures.
Event triggering registration

Event triggering registration of a person in the data source

Birth
Disease diagnosis
Immigration
Practice registration
Start of treatment

Event triggering creation of a record in the data source

Provision of care, for the first time, inside the hospital. The record is created by the administrative support staff when the patient does the check-in.
Data source linkage

Linkage

Is the data source described created by the linkage of other data sources (prelinked data source) and/or can the data source be linked to other data source on an ad-hoc basis?

Yes

Linkage description, pre-linked

Patient code is unique and created on birth or immigration. Codes are non overlapping and there guaranteed to be unique.

Linkage description, possible linkage

Patient code is unique and created on birth or immigration. Codes are non overlapping and there guaranteed to be unique.

Linked data source 1

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

National Death Registry

Linkage variable

cod_utente

Linkage completeness

100%

Linked data source 2

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

National Drug Prescription and Dispensation Registry

Linkage variable

cod_utente

Linkage completeness

100%

Linked data source 3

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

National Vaccination Registry

Linkage variable

cod_utente

Linkage completeness

100%

Linked data source 4

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

Other quality registers

Linkage variable

cod_utente

Linkage completeness

100%

Linked data source 5

Pre linked

Is the data source described created by the linkage of other data sources?

Yes

Data source, other

The totality of data is automatically linked by default because all EHR systems use the same national patient code to register patient data.

Linkage variable

cod_utente

Linkage completeness

100% in ULSM, and can be used to cross agains the totality of national healthcare information available
Data management specifications that apply for the data source

Data source refresh

Monthly

Informed consent for use of data for research

Required for all studies

Possibility of data validation

Can validity of the data in the data source be verified (e.g., access to original medical charts)?

Yes

Data source preservation

Are records preserved in the data source indefinitely?

No

Data source preservation length

50 years

Approval for publication

Is an approval needed for publishing the results of a study using the data source?

Yes

Data source last refresh

Common Data Model (CDM) mapping

CDM mapping

Has the data source been converted (ETL-ed) to a common data model?

Yes

CDM Mappings

Data source ETL CDM version

5.4

Data source ETL frequency

1,00 month

Data source ETL status

In progress