Access and validation

Governance details

Documents or webpages that describe the overall governance of the data source and processes and procedures for data capture and management, data quality check and validation results (governing data access or utilisation for research purposes).

Biospecimen access

Are biospecimens available in the data source (e.g., tissue samples)?

No

Access to subject details

Can individual patients/practitioners/practices included in the data source be contacted?

No

Description of data collection

SNDS database contains mainly three databases for which collection and recording of the data differ.
- DCIR (primary care) : data collection by the health insurance plans of the individuals through healthcare reimbursements and gathered and added to the SNDS by the CNAM (National Health Insurance Fund)
- PMSI (hospital data) : data collection by the hospitals on the hospital stays and hospital outpatient care, gathered by the ATIH (Hospital Information Technology Agency) and added to SNDS by the CNAM
- CEPIDC (causes of death) : data collection of death certificates by the CépiDc (Epidemiology Center on the Causes of Death) and added to the SNDS by the CNAM
Event triggering registration

Event triggering registration of a person in the data source

Insurance coverage start

Event triggering de-registration of a person in the data source

Death
Emigration

Event triggering creation of a record in the data source

Reimbursement of either, medicine, visit to a practitioner, hospital visit etc
Data source linkage

Linkage

Is the data source described created by the linkage of other data sources (prelinked data source) and/or can the data source be linked to other data source on an ad-hoc basis?

Yes

Linkage description, pre-linked

DCIR & PMSI are linked together through direct deterministic linkage on a common patient ID.
CEPIDC is linked to the other sources through an indirect linkage via common variables (age, sex, place of residence, date of death, etc.) with the DCIR patient repository (IR_BEN_R) - linkage for ~80 to 90% of deaths

Linked data source 1

Pre linked

Is the data source described created by the linkage of other data sources?

Yes

Data source, other

CEPIDC

Linkage strategy

Probabilistic

Linkage variable

Indirect linkage with the DCIR patient repository (IR_BEN_R) via common variables (age, sex, place of residence, date of death, etc.)

Linkage completeness

Linkage for ~80 to 90% of deaths

Linked data source 2

Pre linked

Is the data source described created by the linkage of other data sources?

Yes

Data source, other

DCIR

Linkage strategy

Deterministic

Linkage variable

Linkage with PMSI via common patient ID

Linked data source 3

Pre linked

Is the data source described created by the linkage of other data sources?

Yes

Data source, other

PMSI

Linkage strategy

Deterministic

Linkage variable

Linkage with DCIR via common patient ID
Data management specifications that apply for the data source

Data source refresh

Monthly
Yearly

Informed consent for use of data for research

Not Required

Possibility of data validation

Can validity of the data in the data source be verified (e.g., access to original medical charts)?

Yes

Data source preservation

Are records preserved in the data source indefinitely?

No

Data source preservation length

20 years

Approval for publication

Is an approval needed for publishing the results of a study using the data source?

No

Data source last refresh

Common Data Model (CDM) mapping

CDM mapping

Has the data source been converted (ETL-ed) to a common data model?

Yes

CDM Mappings

Data source ETL CDM version

5.3 and 5.4

Data source ETL frequency

12,00 months

Data source ETL status

Completed