Access and validation

Governance details

Documents or webpages that describe the overall governance of the data source and processes and procedures for data capture and management, data quality check and validation results (governing data access or utilisation for research purposes).
https://youtu.be/2bQfgEdKom0

Biospecimen access

Are biospecimens available in the data source (e.g., tissue samples)?

No

Access to subject details

Can individual patients/practitioners/practices included in the data source be contacted?

No

Description of data collection

Extraction of information in the origin systems of electronic medical records
Event triggering registration

Event triggering registration of a person in the data source

Birth
Residency obtained

Event triggering de-registration of a person in the data source

Death

Event triggering creation of a record in the data source

Collection of new information from all the systems that make up the electronic medical record
Data source linkage

Linkage

Is the data source described created by the linkage of other data sources (prelinked data source) and/or can the data source be linked to other data source on an ad-hoc basis?

Yes

Linkage description, pre-linked

Electronic medical record of primary care and hospitals,Hospital pharmacy,Electronic rescription,Appointment manager and diagnostic tests,Population database,Hospital coding system

Linked data source 1

Pre linked

Is the data source described created by the linkage of other data sources?

Yes

Data source, other

ALTAMIRA

Linkage strategy

Deterministic

Linkage variable

person_id

Linkage completeness

The primary data sources have been linked to the OMOP data model using the person code as the union of all the information

Linked data source 2

Pre linked

Is the data source described created by the linkage of other data sources?

Yes

Data source, other

APCantabria

Linkage strategy

Deterministic

Linkage variable

person_id

Linkage completeness

The primary data sources have been linked to the OMOP data model using the person code as the union of all the information

Linked data source 3

Pre linked

Is the data source described created by the linkage of other data sources?

Yes

Data source, other

CIVITAS

Linkage strategy

Deterministic

Linkage variable

person_id

Linkage completeness

The primary data sources have been linked to the OMOP data model using the person code as the union of all the information

Linked data source 4

Pre linked

Is the data source described created by the linkage of other data sources?

Yes

Data source, other

CMBD

Linkage strategy

Deterministic

Linkage variable

person_id

Linkage completeness

The primary data sources have been linked to the OMOP data model using the person code as the union of all the information

Linked data source 5

Pre linked

Is the data source described created by the linkage of other data sources?

Yes

Data source, other

PEA

Linkage strategy

Deterministic

Linkage variable

person_id

Linkage completeness

The primary data sources have been linked to the OMOP data model using the person code as the union of all the information

Linked data source 6

Pre linked

Is the data source described created by the linkage of other data sources?

Yes

Data source, other

RECET@

Linkage strategy

Deterministic

Linkage variable

person_id

Linkage completeness

The primary data sources have been linked to the OMOP data model using the person code as the union of all the information

Linked data source 7

Pre linked

Is the data source described created by the linkage of other data sources?

Yes

Data source, other

TICARES

Linkage strategy

Deterministic

Linkage variable

person_id

Linkage completeness

The primary data sources have been linked to the OMOP data model using the person code as the union of all the information
Data management specifications that apply for the data source

Data source refresh

Yearly

Informed consent for use of data for research

Required for general use

Possibility of data validation

Can validity of the data in the data source be verified (e.g., access to original medical charts)?

Yes

Data source preservation

Are records preserved in the data source indefinitely?

Yes

Approval for publication

Is an approval needed for publishing the results of a study using the data source?

Yes

Data source last refresh

Common Data Model (CDM) mapping

CDM mapping

Has the data source been converted (ETL-ed) to a common data model?

Yes

CDM Mappings

Data source ETL CDM version

5.4

Data source ETL frequency

12,00 months

Data source ETL status

Completed