The Cancer Registry of NorwayFirst published 01/02/2024 Last updated 13/11/2024 Data sourceHumanCancer registryDisease registryDownload as PDF
Pre linkedIs the data source described created by the linkage of other data sources?>NoData source, otherAll linkage depends on specific rules for each registry or cohort, including patient consent (where applicable). The CRN can be linked to all national health registries in Norway, such as:- The Cause of death registry (regular linkage annually)- Medical birth registry of Norway- Norwegian Surveillance System for Communicable Diseases (MSIS)- Norwegian Immunisation Registry (SYSVAK)- Norwegian Armed Forces Health Registry- Norwegian Patient Registry (NPR) (regular linkage)- Norwegian Cardiovascular Disease Registry- Norwegian Adverse Drug Reaction Registry- Norwegian Registry for Primary Health Care (KPR)- Norwegian Prescribed Drug RegistryThe CRN can also be linked to other registries and cohorts, after relevant approvals. For an overview of all health registries in Norway: https://helsedata.no/en/data-sources/?page=1&sort=0Linkage strategyDeterministicLinkage variablePrimarily person identification number. All residents in Norway have a personal identification number from birth or immigration, that uniquely identifies individual residents.Linkage completenessWe describe completeness as stated by each national health registry. All registries below are national and cover the whole intended population. - The Cause of death registry contains information on deaths and causes of death in Norway from 1951 until today - Medical birth registry of Norway contains information from 1967 to the present day about medical conditions during pregnancies, births and newborns in Norway - Norwegian Surveillance System for Communicable Diseases (MSIS) contains information about infectious diseases in humans in Norway, from 1977 until today. - Norwegian Immunisation Registry (SYSVAK). From 1976-2009 only child vaccinations. 2011 - 2020 all vaccinations to all groups in Norway (consent). 2020 - today all vaccinations in Norway (no consent). - Norwegian Armed Forces Health Registry contains information on all persons in Norway who have been registered in or employed by the Armed Forces. - Norwegian Patient Registry (NPR) (regular linkage) contains information from 1997 on everyone who is referred for or has received specialized healthcare at a hospital, outpatients' clinic or from contract specialists. - Norwegian Cardiovascular Disease Registry contains information from 2012 until today about people with diseases of the heart and blood vessels, and about the treatment of these diseases - Norwegian Adverse Drug Reaction Registry contains reports of suspected ADRS of medicinal products (including vaccines) received from from healthcare personnel and residents in Norway. - Norwegian Registry for Primary Health Care (KPR) contains information from 2016 on applicants and recipients of healthcare in Norwegian municipalities. - Norwegian Prescribed Drug Registry has information from 2004 on medicines dispensed by prescription from pharmacies in Norway. For completeness of the CRN, see above or reference 2, Larsen et al 2009.