Administrative details

Data source ID

1111123

Name of data source

The Bulgarian Diabetes Register and the Register of rare endocrine deseases

Data source acronym

BDR-RRED

Data holder

Data source type

Hospital discharge records
Primary care medical records
Specialist ambulatory care records

Main financial support

European public funding
National, regional, or municipal public funding

Care setting

Hospital inpatient care
Hospital outpatient care
Primary care – GP, community pharmacist level
Primary care – specialist level (e.g. paediatricians)
Secondary care – specialist level (ambulatory)

Data source qualification

If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.

Yes

Description of the qualification

The Bulgarian Diabetes register is established following the orders of the Minister of Health № РД-09-167/01.10.2013 г. and № РД-02-26/24.01.2015 г.The Register of Rare endicrine deseases is created and maintained in accordance with the requirements of Ordinance No. 16 of the Ministry of Health from July 30, 2014 on the terms and conditions for registering rare diseases and for expert
centers for rare desease and reference networks for rare diseases - The USHATE is an expert center for rare endocrine diseases and participetes in the European network for rare endocrine deseases - EndoERN.

Data source website

Contact details

Data source regions and languages

Data source countries

Bulgaria

Data source languages

Bulgarian
English
Data source establishment

Data source established

Data source time span

First collection: 01/01/1980
The date when data started to be collected or extracted.

Publications

Data source publications