Administrative details

Data source ID

49196

Name of data source

Global Fukutin-Related Protein Registry

Data source acronym

Global FKRP Registry - LGMDR9

Data holder

Data source type

Disease registry

Main financial support

Funding from industry or contract research
Funds from patients organisations, charity and foundations

Care setting

Other

Data source qualification

If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.

No

Data source website

Contact details

Data source regions and languages

Data source countries

Austria
Belgium
Bulgaria
Croatia
Cyprus
Czechia
Denmark
Estonia
Finland
France
Germany
Greece
Hungary
Iceland
Ireland
Italy
Latvia
Liechtenstein
Lithuania
Malta
Netherlands
Norway
Poland
Portugal
Romania
Slovakia
Slovenia
Spain
Sweden
Switzerland

Data source languages

English
German
Norwegian
Portuguese
Data source establishment

Data source established

Data source time span

First collection: 10/03/2011
The date when data started to be collected or extracted.

Publications

Data source publications