Administrative details

Data source ID

47869

Name of data source

Global Registry for COL6-related Dystrophies

Data source acronym

Global COL6 Patient Registry

Data holder

Data source type

Disease registry

Main financial support

Funds from patients organisations, charity and foundations

Care setting

Other

Data source qualification

If the data source has successfully undergone a formal qualification process (e.g., from the EMA, ISO or other certifications), this should be described.

No

Data source website

Contact details

Data source regions and languages

Data source countries

Austria
Belgium
Bulgaria
Croatia
Cyprus
Czechia
Denmark
Estonia
Finland
France
Germany
Greece
Hungary
Ireland
Italy
Latvia
Lithuania
Luxembourg
Malta
Netherlands
Poland
Portugal
Romania
Slovakia
Slovenia
Spain
Sweden
United Kingdom
United Kingdom (Northern Ireland)

Data source languages

English
Data source establishment

Data source established

Data source time span

First collection: 13/09/2018
The date when data started to be collected or extracted.

Publications

Data source publications