European Porphyria Registry

First published 01/02/2024

Last updated 28/11/2025

Data source

Human

Disease registry

Population Qualitative Data

Population age groups: Paediatric Population (< 18 years)
Neonate
Preterm newborn infants (0 – 27 days)

Term newborn infants (0 – 27 days)

Infants and toddlers (28 days – 23 months)

Children (2 to < 12 years)

Adolescents (12 to < 18 years)

Adult and elderly population (≥18 years)
Adults (18 to < 65 years)
Adults (18 to < 46 years)

Adults (46 to < 65 years)

Elderly (≥ 65 years)
Adults (65 to < 75 years)

Adults (75 to < 85 years)

Adults (85 years and over)

Population

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