Access and validation

Governance details

Documents or webpages that describe the overall governance of the data source and processes and procedures for data capture and management, data quality check and validation results (governing data access or utilisation for research purposes).

Biospecimen access

Are biospecimens available in the data source (e.g., tissue samples)?

No

Access to subject details

Can individual patients/practitioners/practices included in the data source be contacted?

No

Description of data collection

Via NHS EHRs
https://digital.nhs.uk/data-and-information/data-tools-and-services/data-services/hospital-episode-statistics
Event triggering registration

Event triggering registration of a person in the data source

Start of treatment

Event triggering de-registration of a person in the data source

Death
Other

Event triggering de-registration of a person in the data source, other

Patient Opt-out

Event triggering creation of a record in the data source

Secondary Care touch point
Data source linkage

Linkage

Is the data source described created by the linkage of other data sources (prelinked data source) and/or can the data source be linked to other data source on an ad-hoc basis?

Yes

Linkage description, possible linkage

HES linked to other databases via a request to Data Access Request Service (DARS) listed on the website of National Health Service (NHS) Digital at https://digital.nhs.uk/services/data-access-request-service-dars/dars-products-and-services/data-set-catalogue#c.

Linked data source 1

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

COVID-19 Second Generation Surveillance System (SGSS)

Linkage strategy

Deterministic

Linkage variable

NHS Digital complete linkage before providing data

Linkage completeness

For Secondary Care (apart form EPMA) there is complete linkage, EPMA can be linked to 25 NHS Trusts in England.

Linked data source 2

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

Covid-19 UK Non-hospital Antigen Testing Results (pillar 2)

Linkage strategy

Deterministic

Linkage variable

NHS Digital complete linkage before providing data

Linkage completeness

For Secondary Care (apart form EPMA) there is complete linkage, EPMA can be linked to 25 NHS Trusts in England.

Linked data source 3

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

COVID-19 Vaccination Status

Linkage strategy

Deterministic

Linkage variable

NHS Digital complete linkage before providing data

Linkage completeness

For Secondary Care (apart form EPMA) there is complete linkage, EPMA can be linked to 25 NHS Trusts in England.

Linked data source 4

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

Diagnostic Imaging Dataset (DIDs)

Linkage strategy

Deterministic

Linkage variable

NHS Digital complete linkage before providing data

Linkage completeness

For Secondary Care (apart form EPMA) there is complete linkage, EPMA can be linked to 25 NHS Trusts in England.

Linked data source 5

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

Electronic Prescribing and Medicines Administration (EPMA)

Linkage strategy

Deterministic

Linkage variable

NHS Digital complete linkage before providing data

Linkage completeness

For Secondary Care (apart form EPMA) there is complete linkage, EPMA can be linked to 25 NHS Trusts in England.

Linked data source 6

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

HES Accident & Emergency (A&E)

Linkage strategy

Deterministic

Linkage variable

NHS Digital complete linkage before providing data

Linkage completeness

For Secondary Care (apart form EPMA) there is complete linkage, EPMA can be linked to 25 NHS Trusts in England.

Linked data source 7

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

HES Admitted Patient Care (APC)

Linkage strategy

Deterministic

Linkage variable

NHS Digital complete linkage before providing data

Linkage completeness

For Secondary Care (apart form EPMA) there is complete linkage, EPMA can be linked to 25 NHS Trusts in England.

Linked data source 8

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

HES Civil Registrations (Deaths)

Linkage strategy

Deterministic

Linkage variable

NHS Digital complete linkage before providing data

Linkage completeness

For Secondary Care (apart form EPMA) there is complete linkage, EPMA can be linked to 25 NHS Trusts in England.

Linked data source 9

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

HES Critical Care (CC)

Linkage strategy

Deterministic

Linkage variable

NHS Digital complete linkage before providing data

Linkage completeness

For Secondary Care (apart form EPMA) there is complete linkage, EPMA can be linked to 25 NHS Trusts in England.

Linked data source 10

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

HES Outpatient (OP)

Linkage strategy

Deterministic

Linkage variable

NHS Digital complete linkage before providing data

Linkage completeness

For Secondary Care (apart form EPMA) there is complete linkage, EPMA can be linked to 25 NHS Trusts in England.

Linked data source 11

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

Medicines dispensed in Primary Care (NHSBSA data)

Linkage strategy

Deterministic

Linkage variable

NHS Digital complete linkage before providing data

Linkage completeness

For Secondary Care (apart form EPMA) there is complete linkage, EPMA can be linked to 25 NHS Trusts in England.

Linked data source 12

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

Primary Care Data; Harvey Walsh is experienced in applying for linkage to CPRD and OPCRD

Linkage strategy

Deterministic

Linkage variable

NHS Digital complete linkage before providing data

Linkage completeness

Primary Data (CPRD and OPCRD) is linakable to a subest of GP practices in England.

Linked data source 13

Pre linked

Is the data source described created by the linkage of other data sources?

No

Data source, other

Summary Hospital level Mortality Indicator (SHMI)

Linkage strategy

Deterministic

Linkage variable

NHS Digital complete linkage before providing data

Linkage completeness

For Secondary Care (apart form EPMA) there is complete linkage, EPMA can be linked to 25 NHS Trusts in England.
Data management specifications that apply for the data source

Data source refresh

Monthly

Informed consent for use of data for research

Possibility of data validation

Can validity of the data in the data source be verified (e.g., access to original medical charts)?

No

Data source preservation

Are records preserved in the data source indefinitely?

No

Data source preservation length

10 years

Approval for publication

Is an approval needed for publishing the results of a study using the data source?

Yes

Data source last refresh

Common Data Model (CDM) mapping

CDM mapping

Has the data source been converted (ETL-ed) to a common data model?

Yes

CDM Mappings

Data source ETL frequency

1,00 month

Data source ETL status

In progress